Tag archive for "casey"

Faith

Ready or Not

3 Comments 13 December 2008

Lately, the only time I’ve felt overwhelmed by what is happening in our lives is when I go up to the gameroom. This used to be where Casey and I would work out every morning (something she and I used to do before news of the quints arrived and before school began). Now, it is where all of the baby stuff that we have begun to accumulate has been placed temporarily until everything can be organized and some sort of system can be figured out to handle all “Quint Care Operations.”

I’m not sure what it is about the gameroom that kickstarts my heart into panic mode, but it does it every single time I walk up there. Maybe it’s because I’m a guy and being a guy means that I respond to visuals more than anything. The gameroom, more so than Casey’s expanding belly (remember, to this point, I’ve seen her this big before with Eliot’s pregnancy), has become a visual reminder of just how crazy our life is going to be. There are piles and piles of clothes, eight or nine bouncy seats, diapers, diapers, and more diapers, blankets, bedding, bibs, burp rags, more blankets, three pack’n’plays – 90% of all of this stuff has been donated or gifted – and other stuff absolutely necessary (at least that’s what I’m told) to surviving life with five newborns.

It could also be the fact that I’m a “everything has its place and everything should be in its place” kind of guy and these randomly placed piles of stuff simply freaks me out! Actually, I know that’s part of the problem!

The other thing it could be is that the piles of stuff are a clear reminder of just how much life is going to change, and more to the point, how much of our old life Casey and I are going to have to give up in order to embrace this new life. Seeing all of this stuff piled all over my weights, crowding out my space is just too much for me to handle at the moment without having to talk myself down for a few moments.

We never planned on having a big family and we never would have written this script for ourselves so seeing the baby making operation begin to exert its will on our home is a not so subtle reminder of the force it will exert on every aspect of our lives. To be sure, there is a lot to be excited about and we are thankful for this amazing time in our lives, but also to be sure, we have had our share of “why?, how?, and are you kidding me?” moments as this journey has progressed.

Thursday night we had our Bible study group over for dinner and after dinner was over, they helped us rearrange some furniture in preparation for the babies. What I wasn’t prepared to do was clear my weights out of the gameroom, but they just started grabbing everything and moving it to the garage. To say the least, I was a bit pouty while this was happening and I’m not so sure I’m not still pouty.

It’s so strange how little things like that can hit so hard sometimes, but it did. I guess my reaction to all of this is a strong indication that I’m not quite ready for what’s coming, but can you ever truly be ready for five babies at one time?? No, I don’t think you can, but that’s life, right? The lessons learned the best are sometimes the lessons that force themselves on you when you least expect it.

But here’s the deal, we have a lot coming our way and there will certainly be some heartache that accompanies this change, but how can we be anything but grateful and humbled by it all? How many have lost loved ones in the blink of an eye or had to stand helplessly as their house burns to the ground in the middle of night or found out that their baby has a disability that will be with them throughout life? The list could go on forever of all of the calamities and heartaches that strike in an instant, without warning, without mercy and turn people’s lives upside down forever. How on earth do you deal with something like that? I won’t even attempt to get into the “why?, how?, and are you kidding me?” of that…

Not only are we not dealing with calamity or heartache, we have five precious little lives coming into our world, but we’ve had a chance to prepare (as best we can at least). We’ve had a chance to say a prayer (actually, lots of prayers) to ask for guidance, to seek acceptance, and to get the help we need in coming to grips with everything – something a lot of people don’t have the luxury of doing when their life is rapidly unraveling. We’ve had the incredible experience of watching family, friends, and strangers rally around us in support, prayer, and love not only for us, but also for five lives unborn. And amidst all of the preparation and the worry and the how of it all, we’ve had the joy of dreaming of what amazing gifts are being prepared for us by our Father in Heaven.

So, yeah, I get overwhelmed and we worry and sometimes we complain a little bit. But at the end of the day, it all comes back around and we remember just how good we’ve got it…and just how good it’s going to be. As for my weight room, it’s a thing of the past as are many other parts of what I used to call normal life. But as for today, excited anticipation (and the occasional hyperventlation) is here to stay. And our future, well, ready or not here it comes!!
God bless,
Ethan
www.JonesLife.net

Faith

Uplifting? Check!

1 Comment 06 December 2008

Casey just told me this little tidbit from a friend today and I had to share. This is the cool kind of thing we get to experience several times a week…

One of Casey’s mom’s good friends came from Denton today to our baby shower. She drove four hours to get here, stayed for an hour or so, then drove four hours home…totally awesome, but not the reason for this blog.

This is why I write tonight – she told Casey that she prays for the babies every day and that one time while she was praying, she felt an overwhelming sense that she should “pick one.” So she did – she picked Lila Addison as her “one”. And from that day forward, she has said her prayer for the babies and then she says a prayer specifically for Lila. How cool is that? Little girl isn’t even born yet and she already has a prayer warrior assigned to her…VERY COOL!!

This is exactly what I mean when I say the response and the love that we have gotten from everyone has been so uplifting! It gives us such an incredible sense of the power at work in these babies’ lives when we have these encounters! Thank you, Jan, for the love that you’ve shown our family, the quints, and especially little Lila Addison!!

God Bless,
Ethan
http://www.joneslife.net/

The Pregnancy

The Light is Getting Brighter

1 Comment 02 December 2008

We had a great appointment today with our perinatologist, Dr. Berry. We went in for a regular check up and sonogram and by all accounts, things are going very well. All of the babies checked in with normal length and weight and heart rate measurements and Dr. Berry was very happy to hear Casey’s report on how she has been feeling since the hospital stay. Here are some quick stats for you:

– The babies were between the 37th and 75th percentiles in size as compared with normal singleton pregnancies.

– The heart rates were between 126 and 167 bpm which is well within the normal range (one of the babies was sleeping which explains the 126).

– Big Bad Jack is still anchoring the crew weighing in at 1 pound, 14 ounces which puts him in the 75th percentile.

– Three of the girls weighed 1 pound, 4 ounces (37th percentile) while the fourth weighed in at 1 pound, 8 ounces.

Beyond the great news with how the babies are developing, Dr. Berry gave us great confidence that we are nearing the end of the tunnel and the light is getting much brighter! At 23 weeks and 4 days, he said that if Casey were to go into labor at this point he would definitely be able to administer active care to prevent the delivery from happening. What a huge relief after feeling so helpless when we had to go to the hospital just a couple of weeks ago when they told us nothing could be done if she went into labor!

He also felt very confident that Casey will be able to make at least two more weeks, but probably more than that and if she were to go into labor, he felt that he could “keep her pregnant for at least three more weeks”. Putting those two estimates (2 weeks plus 3 weeks) together brings us beyond our first major goal of 28 weeks!! To say the least, we are thrilled with this news!

We talked in more detail about the resuscitation efforts that may be necessary if the babies are born way too early, but the general feeling is that the horrible decisions that would have to be made in this event will not have to be made after all. As long as life progresses as predicted above, this will definitely be the case. Casey and I have committed this to prayer and feel strongly that we will not have to face these decisions!

We have been having a great time with this unique blessing so far, thanks in very large part to the many helping hands around us, but there has also been quite a bit of worry and anxiety to go along with the fun. While we have maintained our faith that all is in God’s hands, it has sometimes been easier to believe than others. We still have quite a way to go, but today’s appointment has allowed us to breathe a little easier as the light at the end of the tunnel keeps getting brighter and brighter! Thank you so much to all of you who have joined us in praying these five little miracles into the world…please keep the prayers coming!!

The Pregnancy

Here Comes the Belly!!

1 Comment 24 November 2008

We had another appointment today with Casey’s ob/gyn and thankfully all went very well. We got to see all of the babies again while they checked their heart rates and all checked out well. Here are some interesting facts about what is coming our way in the next few weeks:

– The babies are currently about 1 pound each, give or take a couple of ounces. In other words, she is carrying 5 pounds of baby. Most of you know that babies are typically between 6 and 9 pounds when they are born between 36 and 40 weeks.

– Casey’s belly (uterus) is officially bigger now at 22 weeks, 2 days than she was when Eliot was born at 36 weeks.

– Our goal weight for each of the babies is 4 pounds which is where they should be if they are born around 32 weeks.

– Therefore, if we make it to 32 weeks, Casey will be carrying 20 pounds of baby!!

– Growth will be rapid, just do the math. It took 22 weeks for the babies to get to 1 pound. Now, they are expected to grow 3 pounds more in only 10 weeks!

– Hold on, I’m not done yet. Don’t forget about the placentas and the amniotic sacks (there are five of them) which will grow along with the babies.

– If we make it to 32 weeks (I keep saying “we” as if I’m helping carry these little guys…forgive me!!), Casey will be carrying around 40 pounds of baby and all of their other little parts!! Just in her belly!!

Those of you who have seen Casey in the last few weeks can testify that she looks exactly the same as she always has except for the belly – I don’t think she’s gained an ounce anywhere else!

However…

Casey is having a really hard time moving around. She is having a a lot of difficulty breathing and can only be on her feet for about 15 minutes before she feels like she really needs to sit back down. The contractions that more or less started last week have not stopped and likely will not stop until the quints arrive. She spends maybe an hour each day on her feet (brushing her teeth, showering, etc.) and the rest of the time is spent on the couch with her laptop, thank you notes, and remote control.

Casey’s spirit continues to amaze me! I can’t begin to imagine what she is going through, physically and mentally, and I am overwhelmed by what she has coming. Watching the struggle that she goes through just to reposition herself on the couch makes me hurt for her and it’s going to get exponentially more difficult in the coming weeks. Yet, she keeps on smiling, keeps her focus on cooking up healthy babies, and keeps on thanking God for giving us this amazing blessing!! Please continue to pray for Casey’s health, her strength, and her spirit as we hunker down for what’s coming our way!

God Bless,
Ethan

P.S. Thanks to Tori Wright Gordon for the pictures you see on this blog. She is a friend of ours from the Denton days and has been a great supporter from afar throughout the pregnancy. Check out her blog at http://www.swampbrat.net/!

The Pregnancy

A Little Dose of Reality

4 Comments 22 November 2008

First, a quick explanation on the picture to the left. The diaper you see there is the diapers that the preemie babies in the NICU wear…smaller than a dollar bill!!! The picture of Casey and I was taken three weeks ago when she was 20 weeks pregnant! Moving on…

As if our week wasn’t crazy enough with our little hospital excursion, we also had a meeting on Thursday called a Patient Care Conference where we met the team of people who will be involved with Casey’s and the babies’ care once we get closer to delivery. There were nurses, doctors, clinicians, neonatologists, perinatologists, obstetricians, a rep from legal, a couple VP’s of something or other, and even one of the chaplains. In all, there were 20 people in the room, not including Casey and I. Twenty people who represented different teams that will be responsible for making labor and delivery of our babies a success…WOW!!

We had already been told that there will be at least 18 doctors present at the delivery (3 assigned to each baby and 3 just for Casey), but we found out that there will be at least 30-40 people involved at any one time while the C-section is performed. The hospital has organized teams of doctors and nurses who have volunteered to be on-call 24/7, including holidays and weekends, starting at 24 weeks and continuing until the babies arrive to ensure that they have all of the needs covered when the time comes.

A Herculean effort to be certain, which we knew was coming, but seeing all of the folks in the room and hearing them describe their role in the birth of the quints served as a little dose of reality as to the magnitude of the situation we are faced with. The doctors discussed several of the different risks involved with premature birth as well as the probabilities of survival and disability and they have asked us to make a few decisions in regards to resuscitation efforts (resuscitation was defined for us as any use of breathing tubes or other equipment necessary to keep the babies alive).

Probably the most striking statistic that was thrown at us was the survival and disability rate as it relates to gestational age of the baby when it is born (the number of weeks that Casey has been pregnant which is 22 weeks as of today). At 24 weeks, the survival rate is 25% and of those that survive, 95% have long term disabilities which may include Cerebral Palsy and severe mental retardation. At 28 weeks, the survival rate is 95% while the disability rate is only 5%. What a difference 28 days can make!!

Casey and I have already made the decision that no resuscitative efforts will be attempted prior to 24 weeks. The likelihood that any of the babies could survive if born that early in their development is highly unlikely and if they did survive, it would only be through incredible intervention that would be very hard on the babies. Beyond that, we have been asked to decide what level of resuscitative efforts we will allow assuming they make it past 24 weeks. Will we allow a breathing tube, chest compressions, or anything beyond that? I don’t know what all of the different levels are, but it is something we will be talking with our doctor about at our next appointment on Monday.

After the meeting, a couple of the nurses took us through the NICU and allowed us to see a few of the babies they were treating. That was an incredible sight to see!! These babies were SOOO little!! It was cool to see the wall of baby prints that they had on display and see how tiny their little hands and feet were. It’s hard to imagine we’re going to have five of these little guys in a couple short months!

All in all, the meeting went very well and we were thrilled with the level of concern that the hospital is taking in preparation of our arrival. We had been counseled on the risks and probabilities of survival and disability when we first found out about the quints so we were not disheartened by this news. We were actually advised to undergo a selective reduction at the very beginning to get down to two babies because the risks are so high. Clearly, this was not an option for us!!

As far as our mindset is concerned, not much has changed. We knew from the beginning that this was going to be a dramatic experience in our lives and it has certainly lived up to expectations! Casey and I have leaned heavily on our faith in Christ to get us to this point and we will continue to do so to get us through the next couple of months. We can use all the prayers we can get so please continue to pray for the health of the babies and for Casey’s body to remain calm as it continues to grow and change rapidly! Please specifically pray for guidance and clarity with the decisions we must make in regards to resuscitation. We’re wading into really murky waters with what is the right thing to do and can use some guidance on this one! Thank you all so much for your love, prayers, and support!!
God bless,
Ethan

The Pregnancy

Update on Casey

6 Comments 18 November 2008

Casey had a great night and the contractions have stopped. Basically, she was experiencing Braxton-Hicks contractions, but way too early in the game to be taken lightly. They are sending her home later this morning with instructions for strict bed rest until the babies arrive. The contractions are expected to continue from time to time so we are officially on pins and needles from here on out. When the contractions become noticeably more painful and increase in regularity, we’ll be headed back to the hospital. I imagine this won’t be our last overnight stay before she is admitted long term.

Thanks to everyone for your prayers and concern! It really is fascinating to see how people have rallied around Casey in prayer during these times of uncertainty.

God bless,
Ethan

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